women 4 hope

Dedicated to addressing women’s issues.

Posts Tagged ‘cfs’

Cancer-Causing Retrovirus Linked To Chronic Fatigue Syndrome

Posted by Catherine Morgan on October 24, 2009

The latest research on Chronic Fatigue Syndrome has it linked to a cancer-causing retrovirus…

Last week I was reading a lot about the latest research linking Chronic Fatigue Syndrome (CFS) to the XMRV Retrovirus.  Some of the articles even implied that people suffering with CFS (like myself) should be excited at the possibility that this news could lead to better diagnosis and treatment of CFS.  But, it’s not exactly good news for CFS patients, especially for patients hoping for a cure.  Here’s why…

Read full post at catherine-morgan.com

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Posted in about me, BlogHer, cancer, chronic fatigue syndrome, chronic illness, depression, Health, life, news, opinion, personal, thoughts, viruses, Women, women's health, women's issues, YouTube | Tagged: , , , , , , , | Leave a Comment »

Chronic Illness: Claims Of Cures Are Often Scams.

Posted by Catherine Morgan on May 18, 2009

Chronic Illness:  Claims Of Cures Are Often Scams.

Do you suffer from a chronic illness with no known cure?  Like Multiple Sclerosis, Lupus, or Chronic Fatigue Syndrome?   If so, you probably wish every day that you could find a cure and finally be healthy and well.

Why is it that just about every illness without a medically proven cure, has loads of people “claiming” to know the cure?  Not only is it disingenuous to promote cures to desperate people suffering with chronic illness, but it also minimizes the seriousness of these conditions.

For instance, I have Chronic Fatigue Syndrome (CFS), and many people believe the cure for this condition is as simple as getting more sleep (and oddly enough, more exercise).  Guess what?  CFS has nothing to do with how much sleep someone gets, and exercise often exacerbates Chronic Fatigue Syndrome.  There is no cure for what I have, but the Internet is full of sites that claim to have “sell” the cure.  Don’t get me wrong, I believe that there are many alternative modalities of  healing that can benefit the symptoms of this disease, but they should not be mistaken for (or touted as) cures.

From Pamela Rice Hahn – It’s All In Your Head

Anyone who copes with Chronic Fatigue Syndrome (CFS) or Fibromyalgia (FM) knows there are people out there with all sorts of theories about what’s wrong with them. We’ve heard it all: You’re just depressed. If you’d exercise more, you’d feel better. The insulting “it’s all in your head.” And on and on.

The worst insult is probably: Everybody gets tired.

We know that! Before we got sick, we just got tired, too.

I’m not the only women suffering with chronic illness that is frustrated by false claims of cures.

Here is a quick video of what it is like to live with Chronic Fatigue Syndrome…

From MSMazeMultiple Sclerosis & Mutual Support

Apparently, I’m the voice of doom because I caution my fellow MSers to be wary of scams touting “cures“ for MS. If I had a dollar for every time I’ve been offered the cure for MS, I could retire. Unfortunately, these scams are intended to make a buck off our hope. I don’t mean to rob anyone of hope. In fact, I’m filled with hope at recent medical breakthroughs. I stand by my advice… be wary of cures that land in your email inbox and always perform due diligence.

Kristie from X-Out MS – MS and My Diet

There is a LOT of information floating around the internet on miracle diet cures – and amazing detoxification methods that will supposedly ‘cure’ multiple sclerosis.

While it may be somewhat exciting and offer some much needed hope for people that live with this disease – I have to be honest and say that some of the things these people are touting are really quite scary and offers a very false sense of hope and expectation. I can assure you that if any one of the people actually had a true and viable cure for this disease – it would have a whole lot more attention than an occasional blip on an internet search engine! Additionally, they would be shouting their findings from the mountain top – eager to share it with everyone they could find – and not charge $29.95 for the ‘e-book’!

Quite honestly (if you can’t tell already) most of these people completely disgust me.

From Stacy Stone at Chronic Illness 101 – Lessons in Chronic Illness

If someone proclaims they have the cure, they would be famous and everyone would be cured. If it sounds too good to be true, it probably is.

So…How do you protect yourself from false claims of medical cures?  You can start by knowing the signs of false health claims

To avoid becoming a victim of health fraud, consumers should learn how to evaluate health-related claims.

First, watch out for websites that offer quick and dramatic cures for serious diseases.

Consumers should be wary of statements that the product is a quick and effective cure-all or a diagnostic tool for a wide variety of ailments. For example, “Beneficial in treating cancer, ulcers, prostate problems, hepatitis, heart trouble and more…”

To be safe, avoid products that suggest the product can treat or cure diseases. “Shrinks tumors, cures impotency…”

Question promotions that use words like “scientific breakthrough,” “miraculous cure,” “secret ingredient” and “ancient remedy.”

–read full article at Haleakala Times

Also See:

From Fraud Files Blog – MLM Scheme, Mannatech Pays Millions For False Claims of Cures.

From The Daily WD – Daily Dose: Cheerios  and Cholesterol

One Lesson From A Decade of Fighting Chronic Illness

Don’t Be Fooled By Produces Claiming To Cure Chronic Fatigue Syndrome

Posted in about me, BlogHer, cancer, chronic fatigue syndrome, chronic illness, depression, Health, life, my life, opinion, thoughts, Women, women's health | Tagged: , , , , , , , , | 1 Comment »

Living Well With Chronic Illness – Redefining Yourself

Posted by Catherine Morgan on October 25, 2008

This issue is so important, and that is because; When you suffer from chronic illness, although you are being treated (even successfully), going back to your former life before you were sick may be impossible. I hear this all the time from others suffering with CFS and FM, and I am certain it holds true for many others suffering with chronic disease as well. The biggest problem, is that many of us “define” ourselves through our work, or what we do for a living. Quite frankly, this is a bad idea even if you are a healthy person. None of us “are” our work. Our work is not who we are, it’s simply what we do. But, we all know it doesn’t always feel that way, especially when out of nowhere, we are unable to do what we do.

So….What do you do, when this happens to you? Well, it’s not so different than when a stay at home mom sees her last child off to college. They call it “Empty Nest Syndrome” for her, and it can be quite devastating for a women who has devoted her life up until then (usually at least 18 years or more) to being the best mom she could be, and doing it as a career. Now she is left with no-one to mother, and she loses her sense of “self”. At this point, she can choose to except her new life and find new and exciting things to do with herself (maybe go back to school, get back into a career, take up a hobby, or maybe travel), or she can choose to be sad and depressed and feel like her life is over because she has no-one left to take care of. It’s not the same as losing your identity due to illness, but it is an example of seeing your life (or identity), as half full or half empty.

Feeling sorry for yourself can be a full time job, but it’s a job that doesn’t benefit you in any way….so just take it on a part-time basis. Then on the days you’re not working hard at that job, focus on finding something to do with your life that can benefit you.

Step 1 – Make a plan. Take some time to write a list of all the things you can do in your current condition (not just work things; hobbies, school, etc)….even if it is something you don’t know how to do. Write down some “dream” ideas too.

This isn’t something you do in one day…do it over days or even weeks. Open your thoughts to ideas you may not have ever even considered before…this is the first step in “re-making” yourself.

Step 2 – Believe in yourself. Start believing it is possible for you to do one or more of these things. Take your pessimistic cap off for a little bit, and let yourself “feel” the possibilities…..see it in your minds eye.

Now, it’s o.k. if you don’t “feel” it right away, it’s going to take some time. The important thing is, to not let yourself feel hopeless, there are always possibilities out there. It’s just that many times we can’t see these opportunities, because we live in a box that we think we can never escape from. Just remember…This happens to everyone, not just you. So just do yourself a favor, and allow yourself to believe that you can escape if you wanted to.

Even thought it’s just two steps, doing them right takes time. This can be a very long process, so don’t be too hard on yourself. It’s taken me years, and I am still only in the middle of the process. But, you do need to start the process…you can’t reach your dreams or your potential, if you don’t open yourself up to the possibility.

Posted in blogging, chronic illness, family, Health, inspirational, life, parenting, self-help, success, Women, women's health, women's issues | Tagged: , , , , , , , | 4 Comments »